How to Build Ongoing Consent Into Nonprofit Storytelling Projects

This article is for informational and educational purposes only and does not constitute legal advice.

A signed media release can be useful, but it should not be the whole consent process. A release may grant permission or address rights. It does not necessarily show that a participant understood why their story was being collected, where it may appear, how it may be edited, or what public attention could mean for them.

Ongoing consent is an ethical practice: returning to the participant’s choice as a story develops. It helps protect agency, safety, and trust. Guidance from New America and Tell Ethical Stories treats consent as a continuing conversation, not a document gathered at the start and forgotten.

Start with a plain-language story conversation

Before an interview, photo session, or filming day, explain the project in terms a participant can understand. Describe why the organization wants to tell the story, the likely audience, and the channels planned at that point. These may include a website, email, social media, fundraising presentations, print materials, or paid promotion.

Also explain whether the material may be shortened, translated, captioned, or reused later; how long the organization expects to use it; and who makes editorial decisions. Be clear about whether the participant will be offered a review for factual accuracy, sensitivity, or confirmation that agreed boundaries were respected. Do not imply that a participant has final editorial approval or guaranteed removal rights unless that is the organization’s documented policy.

Advance topic lists can help a participant decide what they are comfortable discussing. If the project changes, return to the conversation. Ethical storytelling guidance recommends explaining intended use and likely public impact, then updating people when plans shift.

Make the choice genuinely voluntary

This matters especially when a participant receives or seeks services from the organization. A person should be able to decline, pause, skip a question, or leave the storytelling process without affecting access to housing, education, care, or other benefits. Tell Ethical Stories describes this as stakes-free storytelling: participation should not be tied to program access.

Give people choices beyond a single yes or no. Someone may agree to an interview but not home footage, allow a first name but not a full name, or permit use on the organization’s own channels but not in paid promotion. They may want their face hidden, their location omitted, or details about family, school, health, or immigration status left out. Record these boundaries where the production team can find them quickly.

Put check-ins on the production calendar

A repeatable process can include a check-in at the invitation or pre-interview stage, immediately before recording, after filming if sensitive material emerged, before release when a finished piece or meaningful description is available, and before a materially different reuse. A paid campaign, new platform, translated version, or reframing around a new issue may justify another conversation.

These checkpoints are an ethical operating policy, not a universal legal requirement. Still, frequent confirmation can catch misunderstandings before publication. It also creates space for a participant to say that a detail, image, or framing now feels unsafe or inaccurate.

Review safety separately from marketing quality

Before publishing, assess the full package: image, voice, name, location, visible background details, captions, and accompanying copy. Together, these details may expose a participant or related people to stigma, retaliation, unwanted contact, or other harm.

For children, use a more protective process. UNICEF recommends seeking both a child’s age-appropriate agreement and permission from a parent or guardian for interviews and videotaping, without coercion and with an understanding that distribution may be local or global. The child’s best interests should take priority over advocacy or promotion. Changing a name or obscuring an identity does not automatically eliminate risk if other details reveal who the child is or where they live, learn, or spend time.

Keep one usable consent record

Create a secure project record that travels with the story. It can capture contact and recontact preferences, guardian or capacity information where relevant, permitted and prohibited uses, identifiers to avoid, each consent check-in, the release version, participant questions, and the staff member responsible for follow-up.

Limit access to people who need the information. Before footage or photographs move to a freelancer, editor, photographer, or agency, make sure the recipient has the same restrictions. Participant permission and production rights are separate issues: the U.S. Copyright Office explains that the photographer is generally the initial copyright owner of a photograph. Your written agreement with a filmmaker or photographer should therefore cover the nonprofit’s needed rights and require compliance with participant restrictions.

Plan for withdrawal requests before they arrive

Give participants a clear contact route if they want to raise a concern or change their mind. When a request arrives, record it, pause scheduled future uses while it is assessed, identify affected assets and channels, document the decision, and explain what can be changed or removed and on what timeline.

Do not casually promise that every prior copy, third-party repost, printed piece, archive, or search result can be erased. If HIPAA applies, the rules are narrower and specific. HIPAA applies to covered entities and business associates, not every health-related nonprofit. For a HIPAA authorization, revocation must be in writing and generally does not undo actions already taken in reliance on a valid authorization.

Know when a specialized rule may apply

Some projects require more than an internal ethical process. For a HIPAA-covered provider, a film crew cannot enter treatment areas where patients’ protected health information is accessible without prior written authorization from every affected patient. A contracted crew that handles protected health information may also need a business associate agreement.

FERPA applies to educational agencies and institutions that receive U.S. Department of Education program funds; it is not a general privacy law for youth-serving nonprofits. When filming for or on behalf of a covered school, a focused student image or video may be an education record depending on the facts, while an incidental background image at a public event may be treated differently. Work through the school’s privacy office.

COPPA also has a limited scope. Nonprofits generally are not subject to it, although an organization operating for the profit of commercial members may be. If it applies to a child-directed online service, photos, video images, and voices can be personal information with notice and verifiable parental-consent requirements, subject to limited exceptions.

Finally, avoid assuming one release works everywhere. State privacy and publicity protections involving a person’s name, image, voice, or likeness vary by jurisdiction. For stories used across state lines, in paid promotion, or long after filming, seek legal review of release language and withdrawal procedures. An ongoing consent process will not answer every legal question, but it gives participants a clearer voice at every point when the stakes can change.

Sources / References

New America, Appendix B: Ethical Storytelling Guidelines

Tell Ethical Stories, Standards & Best Practices

UNICEF, Ethical Reporting Guidelines

U.S. Department of Health and Human Services, Covered Entities and Business Associates

U.S. Department of Health and Human Services, Film and Media: HIPAA FAQ

U.S. Department of Health and Human Services, Revoking a HIPAA Authorization

U.S. Department of Education, FAQs on Photos and Videos Under FERPA

Federal Trade Commission, Complying with COPPA: Frequently Asked Questions

U.S. Copyright Office, What Photographers Should Know About Copyright

U.S. Copyright Office, Authors, Attribution, and Integrity: Examining Moral Rights in the United States